08:30 – 10:00 P.2.1 Age related macular Degeneration.
Moderator: Dr. Jóhann Ragnar Guðmundsson

08:30 – 08:50
The socioeconomic impact of GA and wAMD in Bulgaria, Germany and the United States
Speaker: Nabin Paudel, Retinal International

08:50 – 09:05 AMD research at Oslo University Hospital: from LUCAS to compounding pharmacy and beyond
Speaker: Professor dr. Morten Carstens Moe, Oslo University Hospital, Oslo, Norway

09:05 – 09:15 Off-label use of Avastin: Scandinavian disparities
Speaker: Tomas Bro, MD, PhD, Höglandssjukhuset, Eksjö, Sweden

09:15 – 09:25 The risk of extending AMD treatment
Speaker: David Epstein, MD, PhD. Sankt Erik Eye Hospital, Karolinska Institute, Stockholm, Sweden

09:25 – 09:35 The Swedish Macula Register
Speaker: Inger Westborg, MD, PhD. Uppsala University Hospital, Uppsala, Sweden

09:35 – 09:50 AMD Epidemiology. Genetics & Associated Serum Proteins.
Ocular, Systemic & Lifestyle Risks
Speaker: Professor emeritus dr. Friðbert Jónasson, University of Iceland, Iceland

09:50 – 10:00 QnA

08:30 – 10:00 L.2.1 Retinal degenerations. Clinical aspects
Moderator: Professor dr. Elise Heon, The Hospital for Sick Children, Toronto, Canada

08:30 – 08:50 Clinical aspects of IRD
Speaker: Professor dr. Elise Heon. The Hospital for Sick Children, Toronto, Canada

08:50 – 09:10 Clinical aspects of inherited macular degenerations
Speaker: Associated professor dr.Line Kessel, Department of Ophthalmology, Rigshospitalet, Copenhagen, Denmark

09:10 – 09:30 Syndromic forms of IRD
Speaker: Professor dr. Hélène Dollfus, CARGO, Hôpitaux Universitaires de Strasbourg, France

09:30 – 09:50 The genetic testing landscape
Speaker: Fiona Waters, Retina International, Dublin, Ireland

09:50 – 10:00 QnA

10:00 – 10:30 Coffee break.

10:30 – 11:30 P.2.2 Assessment of Endpoints in clinical studies
Moderators Associate professor dr. Cecilie Bredrup, Bergen, Norway and Professor dr. Sten Kjellström, Lund, Sweden

10:30 – 10:50 Experiences with Luxturna
Speaker: Associate professor dr. Line Kessel, Department of Ophthalmology, Rigshospitalet, Glostrup, Denmark

10:50 – 11:10 Paediatric specificities in trials
Speaker: Professor dr. Elise Heon, MD, The Hospital for Sick Children, Toronto, Canada

11:10 – 11:30 Developing Patient Relevant Outcomes in Gene Therapy Trials: The Novel Functional Vision Endpoint, the Multi-luminance Mobility Test (MLMT)
Speaker: Dr. Daniel Chung, DO, MA, Philadelphia, USA

10:30 – 11:30 L.2.2 Retinal degenerations – the genetics
Moderator: Professor dr. Jón Jóhannes Jónsson, National University Hospital, Reykjavík, Iceland

10:30 – 10:50 Pattern of inheritance – easy to understand
Speaker: Dr. Eirný Þórólfsdóttir. National University Hospital, Reykjavík, Iceland

10:50 – 11:10 Understanding the results – a difficult task
Speaker: Professor dr. Jón Johannes Jónsson, National University Hospital, Reykjavík,
Iceland

11:10 – 11:20 Lessons from Iceland on the diversity of genetic causes
Speaker: Daníel Þorsteinsson

11:20 – 11:30 ABCA4 related IRDs
Speaker: Professor dr. Frans Cremers, Radboud University, Nijmegen, Netherlands

11:30 – 12:00 K.2.1 Keynote: Stem cell therapy for retinal regenerative diseases
Speaker: Dr. Masayo Takahashi, Vision Care Inc., Kobe, Japan

12:00 – 13:30 Lunch

13:30 – 14:00 K.2.2
Keynote: Scientific results, a rollercoaster between hope and deception
Speaker: Christina Fasser, former president of the Retina International, Zurich, Switzerland

14:00 – 15:00 P.2.3 Phenotype-Genotype Correlations in IRD
Moderators: Josephine Prener Holtan MD, PhD, Oslo University Hospital, Oslo, Norway, and Professor dr. Bart Leroy, Ghent, Belgium

14.00 – 14.10 Natural history and clinical characterization of patients with retinitis pigmentosa caused by mutations in the PRPF31 gene
Speaker: Kristian Lisbjerg, MD, PhD student, Department of Ophthalmology, Copenhagen University Hospital, Denmark

14.10 – 14.20 Genetic basis and phenotypic characterization of Danish patients with Achromatopsia
Speaker: Mette K.G. Andersen, MD, Department of Ophthalmology, Copenhagen University hospital, Rigshospitalet-Glostrup, Denmark

14.20 – 14.35 Whole exome sequencing in the diagnosis of hereditary retinal disorders: A clinical perspective
Speaker: Ragnhild Wivestad Jansson, MD, PhD, Department of Ophthalmology, Haukeland University Hospital, Norway

14.35 – 15.00 ERN-EYE a booster for patients care and research for Rare Eye Diseases in Europe.
Speaker: Professor dr. Helene Dollfuss, Service de Génétique Médicale, Hôpital de Hautepierre, Strasbourg, France

14:00 – 15:00 L.2.3 Basics of stem cell and gene-based therapies
Moderator: Professor dr. Kapil Bharti. National Eye Institute, Bethesda, USA

14:00 – 14:20 Overview of on-going clinical trials with stem cells
Speaker: Professor Dr. Goran Petrovski.

14:20 – 14:35 Stem Cell Based Trials for AMD
Speaker: Professor dr. Kapil Bharti. National Eye Institute, Bethesda, USA

14:35 – 14:50 Clinical trial in opto-genetics
Speaker: Professor dr. Isabelle Audo, INSERM, Paris, France

14:50 – 15:00 How to identify real treatments and good clinical trials as a patient
Speaker: Martin Smedstad, The Retinitis Pigmentosa Association, Oslo, Norway

15:00 – 15:30 Coffee break.

15:30 – 16:00 K.2.3
Keynote: Restoration of vision
Speaker: Professor dr. Mark S. Humayun. University of Southern California, Los Angeles, USA

16:00 – 17:00 P.2.4. Innovations in Ophthalmology.
Moderators: Christina Fasser, Retinal International, and Professor dr. Einar Stefánsson. University of Iceland, Iceland

16:00-16:15 Agnostic gene therapy approaches
Speaker: Dr. Daniel Chung, DO, MA, Philadelphia, USA

16:15-16:30 Eye drops with solubilizing nanoparticle technology in the treatment of Diabetic Macular Edema
Speaker: Þorsteinn Loftsson. University of Iceland, Oculis SA Reykjavik, Iceland

16:30-16:45 Treatment approach for dry AMD – a long journey

16:45-17:00 Gene therapies to protect cones
Connie Cepko with streaming in

16:00 – 17:00 L.2.4  Service and Coping with Low Vision
Moderators: Vala Jóna Garðarsdóttir and Rosa María Hjörvar Iceland.

16:00 – 16:15 National Institute for the blind and visually impaired in Iceland
Speakers: Elva Dögg Jóhannesdóttir Ophthalmologist and Vala Jóna Garðarsdóttir O&M

16:15 – 16:30 Reading with auxiliary aids
Speaker: Rósa María Hjörvar. PhD student in Literature at the University of Iceland

16:30-16:45 The assistive technology, apps etc.
Speakers: Baldur Snær Sigurðsson and Hlynur Þór Agnarsson

16:45 – 17:00 Coping with visual and hearing impairment
Speakers: Halla Dís Hallfreðsdóttir and Elín Yr Hafdísardóttir Arnardóttir